Millions of Americans are affected by Parkinson’s disease (PD), which remain one of the most complex and debilitating neurodegenerative disorders.
However, for Black Americans, the journey with PD is often marked by delayed diagnosis and poorer health outcomes, stemming from gaps in healthcare access and research participation.
Morehouse School of Medicine emphasize that timely detection and treatment are vital for black communities. Early intervention can lead to better symptom management, improved access to care, increased participation in research, and ultimately, a higher quality of life.
Studies show that black individuals with Parkinson’s disease are often diagnosed at more advanced stages as compared to others. This delay often results in more severe symptoms and greater disruption to daily life. Early treatment is essential to mitigate these affects and improve long-term outcomes.
According to the Journal of Parkinson’s Disease, Black Americans are affected by late-stage diagnoses and poorer prognoses. Researchers attribute this disparity to limited healthcare access, cultural and language barriers, and biases within the medical field.
Initiating treatment early, including medications and supportive therapies, can help maintain independence and daily functioning longer. In addition, early diagnosis open doors to specialized care and research opportunities that may not be available otherwise.
Evidence from the Journal of Neurology, Neurosurgery, and Psychiatry suggests that early use of dopamine agonists may slow disease progression and enhance quality of life. Additionally, research published in the Journal of Parkinson’s Disease highlights the benefits of early physical and occupational therapy, including improved mobility, coordination, and reduced disability.
Morehouse School of Medicine continues to lead efforts to close the gap in PD care for
Black Americans. Through its partnership with PD GENEration initiative, is actively recruiting and enrolling black participants in genetic testing and clinical trials. This work is vital to developing more inclusive research and tailored treatment strategies.
PD GENEration is a nationwide program aiming to enroll 15,000 individuals with PD in a free genetic testing and counseling initiative. Its goal is to identify genetic mutations that may contribute to Parkinson’s and to empower participants with personalized care planning.
By participating in research, Black Americans with PD not only gain access to cutting-edge therapies but also help shape the future of Parkinson’s care ensuring that treatments reflect the diverse experiences of those most impacted.
